EHCPs - not worth the paper they are written on?

There is much in the media about Education, Health and Care Plans (which replaced Statements in Education several years ago) and how challenging it can be to obtain an assessment for one, let alone  succeed in securing one which adequately supports your child. But if your child HAS one, has had one (and a Statement prior to that) for many years you might be forgiven for assuming his or her needs were recognised, addressed and that they were receiving support in school or college. You might breathe a sigh of relief that there was relative calm after years of stormy campaigning for adequate support. You might assume that you could go back to parenting, relish the mundane and take a back seat - because the "professionals" are doing their job.

That was my mistake this academic year - after over a decade of fighting for our son I made the classic mistake of taking my eye off the proverbial ball. As a result he's now on the brink of dropping out of college after six traumatic months - after nine months since his last Annual Review; during which time not a single professional has viewed his EHCP - or even commented on the fact that they haven't viewed it- because the local authority "forgot" to issue an updated one last May.

For Real. They "forgot".
Beggar's belief doesn't it?

Mental Health Crisis in our Teens - are we deflecting our own insecurities?

As a parent of four, not least of a young man with mental health problems, I have read recent headlines with interest, concern and despair.

But not for the reasons you might think.

We are facing a crisis in child - and particularly teen - mental health in the UK. A recent Guardian article stated:-

"Children and teenagers are facing an “intolerable” mental health crisis and an urgent cash injection is needed in schools to prevent a lifetime of damage, teachers, doctors and MPs have warned.”

But what actually IS the mental health reality in our young people, and what can we do about it? Is the “Mental Health Crisis” a recognition of pre-existent, long-standing issues, or a new phenomenon? Are we failing our children, or struggling to respond to a new, previously unseen problem which is escalating in our society? Should schools be doing more - or are parents the root cause? Or is Social Media to blame?

The reality may surprise you.

Truth or Dare? Why fake news might be the end product of democratic society.

As I scroll through my Twitter feed, I truly despair. In a week when Jeremy Corbyn has apparently won the Nobel Peace Prize it would seem that soundbite-friendly fake news has finally triumphed over informed and verifiable information. We are hurtling towards a Brexit it seems none of us really wants, a manipulated result of "fake news" generated and sustained by bots filling echo chambers we cannot escape from. If this isn't some dystopian parody of "Brave New World" then I don't know what is. We have a President of the Free World who self selects his truths and our media is fighting for its right to free speech; it's a long way from our imagined past, and I am reminded of a favourite history quote: - 

"Fact is sacred, opinion is free."    C.P. Scott

Yet this assumes a fact is an objective thing, verifiable and incontrovertible, and this is rarely the case. As E.H.Carr eloquently explains in his book "What is History?" raw data (such as the dates of famous battles) is difficult to dispute, but the vast majority of "factual" data with which historians grapple daily is less certain. Most need justification and context. 

"A fact is like a sack, it won't stand up until you put something in it." Pirandello

Facts are also subject to observation, interpretation and (not least) manipulation and they are no more reliable than statistics. Facts rarely speak for themselves and are open to selection and arrangement to suit the purposes of historian, writer and commentator. Since it is impossible to provide a completely objective context to a "fact" they become tools to justify opinion, rather than starting points for consideration.

The nineteenth century was perhaps the great age of "facts", with historians attempting to chronicle in full the "events of the past" in total denial that by selecting events and themes, imposing their own education and philosophy on their work and neglecting vast areas they were being entirely subjective. Men like Macaulay and Trevelyan made sweeping generalisations to facilitate their seemingly impossible task of chronicling History to portray the bigger picture. As an historian myself I abhorred the obvious neglect of the less important individual, of social and economic trends and the use of the past to justify the present; but undoubtedly without their brave attempts to achieve so much we would have been deprived of the fascinating stories which contributed to our collective understanding and appreciation of our shared past. Inadvertently perhaps, these men were using past "facts" for a political purpose - the justification of British world supremacy and the growth of our Empire. Nothing new, this was the use of facts for a purpose, known as propaganda.

Photo by Jingda Chen on Unsplash

And so it begins...

So next Monday is D Day for son #2. Or rather, GCSE day. The first day of his GCSE exams which continue for the next calendar month. But not so very long ago, I didn't believe we would get to this point. That this would not be his future, and we needed to consider "alternative options" as advised by so many professionals. But our son is testament to the fact that you can never - and should never let a diagnosis, multiple diagnoses, a previous reality and complex difficulties define you. As a mother, I have learned more from my second son than my other three children combined. I've learned patience (!), resilience, that a glass of wine on Friday night can solve a multitude of problems... but most of all I've learned to believe in my kids. I have faith; faith that you can only do so much, and that actually - it really will be OK.

To give you an idea of the significance of Monday, here is a reminder of where we've come from...

Never one to subscribe to a predicted trajectory, our ever-so-unique, exquisitely frustrating and unbelievably resilient young man has outdone every single prediction of progress. And some. I only hope his primary school teachers get to read this.

Great Ormond Street : The Child First and Always?

Last night we waited for the ITV programme on Great Ormond Street with trepidation. So many families I know feel violated all over again by the articles over on The Bureau of Investigative Journalism which although ground breaking in many respects fall short of holding the Gastro department at GOSH to account.  They - and we - have had to endure years of poor care/no care/false accusations whilst being kept in the dark about what was really happening at the hospital. For some it's cathartic that some of the truth is coming out at last, but for many it's opening old wounds.

A Post Fact Era

- or how Great Ormond Street Hospital for Children managed to avoid the factual information of their damning Investigative Review in 2015 from going public whilst parents took the blame.

So today, you have probably read The Guardian article on over diagnosis and over treatment of EGID at Great Ormond Street Hospital over the past seven years. Having been in the middle of this for all of those seven years, I can assure you there is MUCH more to the story. There is more info here, sadly the events in Syria meant the Guardian article was significantly reduced.

Warning: This is super long. 

The events at Great Ormond Street over the past few years have left many of my friends and I reeling; collateral damage as the Gastro department attempted to extricate themselves from a hugely damning (and damaging, had it been made public) investigation by the Royal College of Paediatrics and Child Health. What followed their investigation in 2015 should make you angry. Very angry. This hospital persistently campaigns for charitable funding over and above any other hospital in the UK. Many departments are centres of excellence, but not Gastro. The RCPCH identified considerable failings, but in an attempt to restore order the proverbial baby went out with the bath water. Good doctors were scapegoated along with parents and the biggest losers of all were the patients. 

Children.

"Identity" Politics and the cost of feminism today

So another "International Women's Day" rolls round and Twitter is awash with discussions and comments on "feminism" - whatever that is or may be. But as a woman, I feel the elephant in the room is not any of the topics being discussed under the umbrella of feminism.

The biggest issue facing women in the West is loneliness.

If we are really going to change the world for women in the 21st Century, it is vital we address the silent majority of women - often older women - who are as concealed in our society as those shrouded in hijab. We are largely invisible, ostensibly superfluous, and yet without the veritable army of middle aged women the country would pretty much grind to a halt. This week BBC Radio Suffolk have aired an excellent discussion about women in the workplace going through the menopause, and how their needs need to be met. With an ageing population and the elevated age of retirement we *need* older women to fill job vacancies, and must recognise their needs. But I would venture as a tentative start before this can happen their existence and daily reality needs to be acknowledged.

Historically older women held a senior social position in communities - and still do in traditional cultures. But in the West we seem to have liberated younger women, at the expense of their mothers. Feminism has been hijacked by the young, who have redefined and liberated it to make it "fit for purpose" today. Or perhaps have they merely rebranded it to meet acceptable, liberal norms that metropolitan society find acceptable?

Gay rights - a hugely important movement - gained mainstream credibility and acceptance during the 1980s and 90s at the same time as women were raising their profile in the workplace, staking their claim to traditional male roles and trying to "prove" their worth as mothers and professionals. It seems to me that this was a useful train that feminists unconsciously boarded more recently to further their cause and raise their profile, but in doing so real feminism, the practical focus on the role of women in society has been tossed aside as a worthwhile sacrifice whilst concepts of gender are discussed ad infinitum. Meanwhile, the fundamental position of women in society beyond those groups goes under the radar. But feminism is not a closed box of discussion and debate, it is alive and kicking in 2018 and should embrace the older generation of women.

Today we live in a society where little girls can be boys, boys can be girls and both can be parents and professionals. But it's a world where too many older women are invisible carers, feeling disconnected from society and lacking a sense of self worth with little sense of identity. An historic social casualty of the modernisation of the role of women, the irony of the feminist tradition is the blow it's dealt the older generation.